Monday, October 1, 2012

Back and forth...


   So, the Appt with Braverman is set,  but now, we are having car issues, and DH might have to work that week/day. That, combined with the 400 bucks I need to get down there, pay for child care, pay my co pays, gas etc... It is looking like we will have to wait till after the first of the year to go down there for testing. It totally sucks. If both cars did not need to be fixed/inspected etc, we would be able to swing it, but as it stands right now, we will have to change the plans...

   The ONLY good thing...My local RE, is willing to cycle with me, using femara, dexamethasone (a steroid like prednisone to suppress immune issues), Intralipids ( IV infusions that lower the NK cell activity) Lovenox, progesterone and estrogen. So, basically, what I would be doing with Braverman anyway, since I cannot afford the IVIG treatments, those are 3 grand a pop, and need to be done every 2 weeks!! The intralipids are about 80 to 100 bucks a pop, also needs to be done every two weeks, before pregnancy and during. All the other meds are cheap, like less than 100 bucks. so not too bad.  So, at least I have a RE willing to work with me, and try treating me empirically for immune related issues, which is more than I can say for the last RE I was seeing who point blank, told me Immune issues are bogus...

I will know by Wed or Thursday if we will be going to Braverman this month, or waiting and cycling with my local RE...And of course, all of this is pending the HSG results on Wed morning...

I hate this back and forth crap! I just want to get the ball rolling in some kind of direction, so I can feel like we have a "plan" and have something to look forward to!

2 comments:

  1. I can't believe your last RE said that autoimmune issues are bogus. Um no, pretty sure they are a real thing that affects fertility! Wow.

    Glad you are working with someone better for now and hoping the other apt. will work out soon!

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  2. Bless your heart! I hate waiting and not knowing, too. It seems like we spend our lives waiting. Waiting for the right time, waiting to save money, waiting until after the summer/winter/holidays..and now I have waited so long I am 32! Getting nervous that it is never gonna be my time. But I am still waiting!

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